Arizona Hemophilia Associationhttp://www.arizonahemophilia.org
The Arizona Hemophilia Association (“AHA”) is a volunteer-based non-profit that works to improve the quality of life of individuals and families affected by bleeding disorders by providing caring support, quality education and targeted advocacy aimed at enhancing medical care and insurance coverage for our community in the entire state of Arizona. The AHA has served families and individuals affected by bleeding disorders in Arizona since 1967, providing bilingual and bi cultural services and programs. We are the only such organization in the state of Arizona. Bleeding disorders are life-threatening, debilitating, and expensive to treat with many physical, emotional and social challenges. A child with severe Hemophilia will spend over $150,000 annually to prevent bleeding. Some children and adults build up inhibitors to the treatment and the costs can exceed $1,000,000 per year. Failure to preventatively treat the disorder can result in prolonged painful bleeds that cause permanent and severe damage. Proper medical care and an ability to manage through the ‘insurance maze’ becomes paramount. Teens need to fully appreciate the importance of getting a quality education so that they can get a job with sufficient insurance.